Why the butterfly?  People living with Lupus often have a rash on their face called a malar rash.  Commonly called a 'butterfly' rash, it appears across the nose and cheeks, in the shape of a butterfly's wings.  You will find a different butterfly on each page, representing how different Lupus is for each person. Welcome to the Lupie Bin!

Established 2/13/2001

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1/1/05 - As of this date, I will no longer answer e-mailed questions regarding your personal health. I encourage anyone with questions about lupus and how it may affect them to contact their physican AND their local chapter of the Lupus Foundation of America. Click here to find a chapter in your area.




Welcome! Updated 3/28/2008! Updated pages: Lupie Experiences, Links. Check back often for more updates!


"What exactly is a Lupie", you ask? Lupie is a nickname for an individual with Lupus. So now, of course, your next question is "What is Lupus?"

Lupus is a chronic, autoimmune disease ('auto' meaning 'self'), in which the body's immune system becomes hyperactive and attacks the body's normal tissues. In very simple terms, it is like the body being allergic to itself. The exact cause of Lupus is unknown, although genetics, environmental elements and a variety of other factors are probably to blame. It should be noted that Lupus is not a contagious disease and is not contracted outside of the body.
There are three types of lupus: Systemic, Cutaneous (primarily affecting the skin) and Drug-Induced.

Lupus affects men and women alike, but occurs 10 to 15 times more frequently among adult females than among adult males. The symptoms are the same for men and women. Common symptoms are painful/achy joints, extreme fatigue, arthritis, sun sensitivity, 'butterfly'-shaped rash across the cheeks and nose, and more. Often, major organs (kidney, lung, heart, brain, etc...) come under attack causing a wide array of symptoms and problems.

Diagnosing Lupus can be difficult, as many of the symptoms are vague and mimic those of other illnesses. A combination of tests, medical history and observation can help lead to a proper diagnosis.

More people have Lupus than AIDS, cerebral palsy, multiple sclerosis, sickle-cell anemia and cystic fibrosis COMBINED. Research data shows that between 1,400,000 and 2,000,000 people are reported to have lupus.


Someone you know has Lupus.


'The only sure thing about lupus, is that there is no sure thing about lupus.' (- Coping with Lupus; Robert H. Phillips, Ph.D.; 1991)



Join The Lupie Bin's MSN Group to post messages, leave questions for other lupies, find pen-pals, etc. today! CLICK HERE to join!
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Frequently Asked Questions About Lupus What's New in Lupus News Favorite Links
Chat with Us! Lupus en Espanol Personal accounts from Lupies about the struggles and triumphs of living with Lupus.
Meet Our Lupie Friends! Books and Other Stuff Lupie Fun Page - recipes, poems, etc
In Memory of... Info about children with lupus & chronic illness Read about Lupus & Herbal Supplements
Must-see Articles Lupus and Chronic Illness in Men Calendar of Events
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Write your Representatives about lupus research funding and other health related issues!



Click here to sign the Dorough Lupus Foundation Stamp Petition. 25,000 signatures are needed to help create the first Lupus postage stamp.





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Did you know having a pet can lessen feelings of physical pain, lower blood pressure, lower cholesterol and on top of that give you unconditional love? Rescue a friend from your local shelter!





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March 28, 2008


DISCLAIMER: The information and advice contained in The Lupie Bin website and all the web sites linked here are not intended to replace the services of a trained healthcare professional, nor to substitute for the medical advice of your physicians. Visitors should regularly consult with their own personal physician in all matters relating to their health, particularly in respect to any symptoms that may require a diagnosis or medical attention. The owner of this site is not and does not represent themselves as a doctor, nurse or other healthcare professional. The Lupie Bin makes no representation or warranties with respect to any treatment, action, or application of medication or preparation by any person following the information offered or provided within this web site or the sites linked here. I will not be liable for any direct, indirect, consequential, special, exemplary or other damages arising from any actions taken by visitors to these web sites. Be advised that this site and the images on it are copyrighted. All content may not be reproduced in any manner without written permission



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